One family in Arvada, Colorado is trying to spend as much time as they have with their 5-year-old son, Jaxon.
“Yes, our neighborhood is decorated for Christmas,” said Amanda Baumgard. “Even the mailman sees our house and is like ‘what are you guys doing?’ ”
From the outside, it could be peculiar why the Baumgard’s house has Christmas decorations during the Halloween season, however, the reason is very simple.
“Christmas is Jaxon’s favorite holiday,” Baumgard said. “Our son Jaxon has been battling cancer for about three years now. And a few months ago we found out it was going to be terminal. Just this past Friday we found out we only have a couple more weeks. Celebrating all the holidays together as a family is super important to us.”
The Baumgards spent the last couple months celebrating with Jaxon by taking him to Disney World and celebrating the holidays early.
“Right now, he’s mostly in a wheel chair and can’t walk,” Baumgard said. “Me and my husband’s aunt were looking for wheelchair costume ideas and that’s when we stumbled up Lon’s website.”
Lon Davis is the owner of Walkin’ Rollin’ Costumes, based out of Kansas City, that makes Halloween costumes for kids in wheelchairs.
“Jaxon’s costume has got to be the hardest costume I’ve ever had to make emotionally,” Davis said. “I wanted to make his costume perfect, more so than any other costume.”
Davis created a custom Toy Story costume for Jaxon. Jaxon’s wheelchair will be Bullseye while Jaxon will be Woody from Toy Story.
ARVADA, Colo. (CBS4) – Businesses in Old Towne Arvada came together to put on an early Halloween celebration for a boy with autism who is suffering from cancer on Saturday, after doctors warned cancer would most likely take his life before holiday. The 5-year-old boy passed away one day after the celebration that was just for him.
As soon as Lon Davis and his son Reese,13, heard about Jaxsons grim battle, the two created a custom-fit Toy Story horse wheel chair costume in less than a week.
We build costumes for kids in walkers and wheelchairs free of charge to the families, said Davis, owner of Walkin & Rollin Costumes, a non-profit based in Olathe, Kansas.
When Jaxon’s mother signed up for a request, one of the things she said was that Jaxon is on hospice. And this was going to be his last Halloween. And so we knew we were going to build the costume no matter what, Davis said.
You would have never known he had cancer until the last week, explained Amber Baumgard, Jaxons mom.
Jaxon, who also has autism, had been battling the rare bone cancer for three years. But his family only recently learned that his surgery and bone marrow transplant did not work.
It’s horrible, Baumgard said. It’s something as a parent that you fear could happen, but you never think would happen to you. It’s your worst nightmare times a million and then some.
The Baumgard family and supporters wanted to make sure that this Halloween season would be a special one.
Volunteers with 15 local businesses came together to give out treats and smiles for Jaxon and his family.
When I heard the news (of his prognosis), it was heartbreaking, said Iggy Michniacki of Project-Nerd, who organized the occasion.
Alongside Jaxon, his parents, and his little sister, friends and strangers suited up in costume, walking door to door down Grandview Avenue for trick-or-treating.
He has a little sister, and (I hope) that she can build some good memories with him before he passes, Michniacki said. She can re-visit it and remember her brother and remember a little bit more about those times that she had with him.
Baumgard said she hoped the event would do more than raise money for Jaxon. She hoped it would also raise awareness and funds for pediatric cancer research.
There is a GoFundMe page set up to help with Jaxon’s family with his medical and funeral expenses.
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Melissa Garcia has been reporting for CBS4 News since March 2014. Find her bio here, follow her on Twitter @MelissaGarciaTV, or send your story idea to [email protected]